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What’s a lifestyle blog?

A lifestyle blog is a blog that doesn’t fit into one category because the blogger shares about different areas of their life. In this case, it means that this isn’t strictly a chronic illness blog. That’ll be the majority of what I write about, because that’s what makes up most of my life right now, but I also plan to talk about other things when they come up, and not always through the perspective of chronic illness. For example, I’m working on decorating and organizing my house, and rebuilding my wardrobe. I want to share craft projects when I’m able to do them, and maybe book reviews when I start reading again. I’ll try to label posts appropriately so you can skip any topic that doesn’t interest you.

Who’s Who?

Dan: My husband. We met in 2004 and married in 2009.
Leo: Our gray half Maine Coon. Born and brought home in 2009.
Luna: Our black half Maine Coon. Born and brought home in 2010.
Rosie: Our chihuahua. Born in 2003, a member of Dan’s family since 2004, and ours since 2013.

The 5 of us share a house with my parents and sister, and their cats James and Jasmine. I also help my neighbor look after the local feral cats, but I’ll list their names elsewhere.

Diagnoses

Glossary

EDS: Excessive daytime sleepiness (sorry to confuse people who have Ehlers-Danlos syndrome)
Herx/Herxing: Jarisch-Herxheimer reaction (worsening of Lyme symptoms during treatment)
LLMD: Lyme Literate Medical Doctor
MSLT: Multiple Sleep Latency Test (daytime nap sleep study used to diagnose narcolepsy)
NDT: Natural dessicated thyroid medication (e.g. Armour, Nature-throid)
Port: Port-a-cath or mediport – a type of central venous catheter
POTS: Postural orthostatic tachycardia syndrome
PWN:
Person/People with narcolepsy
PWON: Person/People without narcolepsy
RE: Reproductive Endocrinologist
Spoons: A way of measuring energy with chronic illness, from “The Spoon Theory”
SSDI: Social Security Disability Insurance
TTC: Trying to conceive
Xyrem: Sleep medicine for narcolepsy

Timeline of Events

* Asthma & hypoglycemia since childhood, & possibly infected with Lyme then
* Lived in Boston from 2004-2009 for college

2005: Diagnosed with narcolepsy
2006: Babesia symptoms started, went on medical leave for one semester
2007: Told doctors I was still fatigued and losing weight but they couldn’t find anything
2010: Lost job, dropped out of college
2011: Started TTC
2012: Diagnosed with Hashimoto’s and PCOS, frequent urination started, saw an RE
2013: Diagnosed with sleep apnea, postponed IVF
2014: Diagnosed with adrenal fatigue, applied for SSDI, diagnosed with Lyme
2015: Started treating with LLMD, approved for SSDI, started IV antibiotics, moved from moldy home